Imagine if you can, learning that you were pregnant for the first time.
First the shock, then the joy, then the realization that you and your
spouse are going to be parents. You go through all the milestones that
one goes through with pregnancy. Morning sickness, loss of memory and
train of thought, fatigue, excess energy, food cravings...sometimes
weird ones. Seeing your baby for the first time on the ultra sound,
hearing your baby's heartbeat, watching your belly grow, finding out if
its a boy or a girl. Then the day for your babies arrival finally comes,
you are so excited and nervous, but mostly in a lot of pain and
exhausted. Then after the pain, pushing, and exhaustion you hear your
baby's cry. You are so thankful that she is finally her, they place her
in your arms for a little so you can see her and say hi. Then they say
they need to clean her up and do some tests. They take a long time, in
fact they take a very long time, and there is a lot of whispering
between the doctor an the nurses. Then it hits you, somethings wrong.
But what could be wrong with such a sweet precious angel. After a few
more long minutes the doctor comes over and says that your sweet fragile
little baby has a heart murmur. It could be nothing but they would like
to do a few tests to make sure. The nurses finally bring you back your
sweet little girl, wrapped up in a cute blanket with a cap on her head.
After a few days in the hospital full of visitors and happy times with
family and your new little one the day comes that you can finally get to
take your little one home. You go through what they say is the usual
routine before you leave. Watch videos, get shots, fill out paperwork.
Then the doctor says they want to do a few more tests on your baby
before you leave. An hour goes by, then two. You start to get bored but
after four hours the doctor comes back and says that you are ready to be
sent home. However he has made an appointment with a cardiologist at
the Children's Hospital just to make sure but he thinks something is
wrong with your baby's heart. Two weeks later sitting in the
cardiologist office, he tells you that your baby has a birth defect and
needs to have open heart surgery to fix it.
This is not my experience, but it is the experience of my sister in law.
Her first child, a beautiful baby girl was diagnosed with a Congenital
Heart Defect known as Tetrology of Fallot. At 6 months old, my niece Abby had to undergo an open heart surgery to fix a hole in her heart.
I cant even imagine the emotion that came with finding out Abby had a
CHD. I have read her mothers account numerous times and have gotten her
most descriptive account of what she felt and went through personally.
But to me it is still incomprehensible. I wasn't there for this time in
Abby's life. I met my husband, her uncle, when she was 6 years old. But
she touched my heart and I instantly fell in love with her. She is the
reason I started to help spread awareness and do this contest and event,
and I keep it going because of her as well as all the beautiful heart
babies and heart angels that I have learned about since starting to help
spread awareness. You can visit her facebook page to learn more about Abby.
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